So for those who are following:
We are 25 weeks 5 days and my cervix is holding steady at 2.8 which is low but still not in the scary range. We got our blood work back stating we have a 1 in 19 chance of 22Q11 of course its such a wide spectrum we are not truly sure what to expect but the one thing I definitely expect is to love him or her regardless. We got to see the cardiologist again and he finally was able to confirm the Tetralogy of Fallot (TOF) he was able to see all of the traits necessary to say he was positive that’s what it was.
The good news is we have a definite answer…. the bad news is we still do not what will happen after baby is here which is
a little A LOT scary. We do have a plan though,
Plan A: If baby comes out having a tet spell (being blue) they will do a partial repair right away and then open heart will follow in the following months.
Plan B: If baby tolerates labor fine and if breathing well and doing well we can bring baby home and wait for a complete repair (open heart) in the following months
Either way with both plans they will only allow baby 2 tet (turning blue) spells as soon as that is reached we have open heart asap and the other thing is we will be sent home with lots of devices to keep evodad and I sane so we are not constantly worrying if the baby is ok, the machines will help us to know.
The real task is making it to full-term, with having a history of preterm labor I have been on Progesterone shots since 15 weeks in order to stop preterm labor and so far its been working. The hope is to stop the shots at 36 weeks like medically suggested and to make it to 37 weeks at the very least. Preemies have an amazing strength to survive however with baby having a CHD (congenital heart defect) they have assured me mortality rates are much higher.
To continue to follow our journey check back often, follow us on FB, twitter, and Instagram using #evomomsheartbaby